Which doesn't happen very often, but I do get visits sometimes(relatives etc). They always want to discuss my illness and I want to talk about ANYTHING but my illness. It's life consuming enough, without it being a main topic of discussion. I want to hear about others and their lives, but I get the feeling, they are trying to be kind. I really don't need sympathy. I wish some people would stop seeing my illness and remember I'm still 'in' this body! I'm still here.

yeh I know what you mean, I am going to MIND atm as in my previous experiences with ill health, when you talk to friends about your problems, they end up going away, so I goto listening sessions in MIND where I sit, one to one with a worker and talk my head of for an hour, it helps.
I dont have many friends as I lost them when I got ME and had a breakdown years ago, so I am trying to keep the ones I still have.

Hi both

It's hard for me to relate to what you have both said as my family do not want to talk about my illness. Some times it would be nice if I could tell them what I and many others are going through but they all seem to avoid asking me anything about fibro. And as for friends well like so many others they have disappeared over the years and the only friends I seem to have now are all suffering from fibro too.

Loads of gentle hugs

Sundance x

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hi all i seem to get both people either ignore it or question me into depression .never seem to get the won u want when u need it though most off my mtes disapeerd as i couldnt do the same things as i used to so dif to ave fibro xx

Hi firebreather

I must admit I don't have many mates at all now, and the few I have all seem to have fibro or some other illness.

But then as my old nan used to say if they dump you when the going gets tough, then they were never your true friends to begin with

Any way I would rather have a group of mates who have what I have, at least you know they understand what your going through and they don't seem to lie to you either. (well mine don't, if I look crap then they tell me)

Well I hope you can class us all on here as your mates.

Loads of gentle hugs

Sundance xx

thanx hun was nice reply the gentle hugs shows how much u know.my support has been bad because i had complained they are hurting me when helping with baths they just kept saying i was being over sensitive .tried to explain that was the whole point of fibro but didnt get it people think u being a moaner and it isnt at all as u well no

Hi

Hope you have had a good day....I have been walking round Neath trying to get the shops over there to donate gift vouchers or items for our Christmas draw, I know there are plenty of other causes out there and that we all need money, but it does get too you a bit when everyone seems to be donating to the larger organisation the ones who have been up and running for years..but never mind we keep battling on been up since 6.15 this morning so starting to feel really tired now

I believe Digger has gone on his hols, so I hope he is having better weather than we are having...

Take care

Loads of gentle hugs

Sundance xx

poor you so dif toget any funding i know i have done it before for other oranisations if there is anything i can do to help i would be pleased to helpi can do stuff via phone and email as my mobility not up to anything else ,im in the middle of trying to get backing for mysupport dog but please let me no XXX

hello all
i am new to this, so please understand i`m a bit nervous(and i cant spell lol)
i was diagnosed earlier this year and it is hard to get my head around. my fam.&friends
arn`t much help im afraid
sorry for moaning on
love&hugs xx

hi dizzywelcome to fms chat i feel for you as being newly diagnosed and dont wory you have fibro we dont expect you to be able to spell lol freinds and family often dont understand i have had it for many years and most of mine stil dont but there is hope youwill find so people who do understand there are also many books and sites includng this one that can help you to explain to others wat the condition is big gentle hugs xxx